Privacy Policy

COGNO (Cooperative Trials Group for Neuro-Oncology) is committed to protecting the privacy of our members, research participants, and website visitors. This Privacy Policy explains what personal information we collect, how we use and protect it, and the choices you have. We handle personal information in accordance with the Australian Privacy Act 1988 (Cth) and the Australian Privacy Principles (APPs).

Last updated: 1 July 2026

Who we are

COGNO is a membership-based cooperative clinical trials group focused on neuro-oncology research in Australia and New Zealand. In this policy, “we”, “us” and “our” refer to COGNO.

Information we collect

We may collect the following types of personal information:

  • Membership details — your name, email address, occupation or profession, institution, membership type, and contact details (phone, mobile, postal address).
  • Account information — the login credentials you use to access members-only areas of this website.
  • Correspondence — information you provide when you contact us, register for events, or subscribe to our newsletter.
  • Website usage — technical information such as your IP address, browser type, and pages visited, collected through cookies and analytics tools.

How we use your information

We use your personal information to:

  • administer your membership and provide access to members-only content;
  • communicate with you about COGNO activities, clinical trials, education events, and newsletters;
  • facilitate participation in research, committees, and collaborative activities;
  • improve our website and services; and
  • meet our legal, regulatory, and governance obligations.

Membership and account data

Member records are used solely for membership administration and access control. They are not published, sold, or made available as a public directory. Access to member information is restricted to authorised COGNO personnel.

Cookies and analytics

This website uses cookies and similar technologies to keep you logged in, remember your preferences, and understand how the site is used. You can control or disable cookies through your browser settings, though some features of the site may not function correctly without them.

How we share your information

We do not sell your personal information. We may share it only where necessary with:

  • service providers who help us operate our website and communications, under confidentiality obligations;
  • research partners and collaborators, where you have consented or where required for a study in which you are involved; and
  • regulatory, government, or legal bodies where required by law.

Data security

We take reasonable steps to protect personal information from misuse, loss, unauthorised access, modification, and disclosure, including secure hosting, access controls, and encryption in transit. No method of transmission or storage is completely secure, and we cannot guarantee absolute security.

Data retention

We retain personal information only for as long as necessary to fulfil the purposes described in this policy, or as required by law and our record-keeping obligations. When information is no longer needed, we take reasonable steps to securely destroy or de-identify it.

Your rights

You may request access to, or correction of, the personal information we hold about you. To make a request, or if you have a privacy concern or complaint, please contact us using the details below. We will respond within a reasonable period.

Third-party links

Our website may contain links to external sites. We are not responsible for the privacy practices or content of those sites, and we encourage you to review their privacy policies.

Changes to this policy

We may update this Privacy Policy from time to time. The current version will always be available on this page, with the “Last updated” date revised accordingly.

Contact us

If you have any questions about this Privacy Policy or how we handle your personal information, please contact the COGNO Executive Office at info@cogno.org.au.

This policy is provided as a general template and should be reviewed by COGNO’s legal adviser before publication.